How to Tell When We Will Die
Audiobook & Ebook

How to Tell When We Will Die by Johanna Hedva | Audiobook Review

By Johanna Hedva

Narrated by Johanna Hedva

🎧 15 hours and 2 minutes 📘 Zando Penguin Audio 📅 August 6, 2025 🌐 English

About This Audiobook

The long-awaited essay collection from one of the most influential voices in disability activism that detonates a bomb in our collective understanding of care and illness, showing us that sickness is a fact of life.

In the wake of the 2014 Ferguson riots, and sick with a chronic condition that rendered them housebound, Johanna Hedva turned to the page to ask: How do you throw a brick through the window of a bank if you can't get out of bed? It was not long before this essay, "Sick Woman Theory", became a seminal work on disability, because in reframing illness as not just a biological experience but a social one, Hedva argues that under capitalism―a system that limits our worth to the productivity of our bodies―we must reach for the revolutionary act of caring for ourselves and others.

How to Tell When We Will Die expands upon Hedva's paradigm-shifting perspective in a series of slyly subversive and razor-sharp essays that range from the theoretical to the personal―from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death, and the color yellow. Drawing from their experiences with America's byzantine healthcare system, and considering archetypes they call The Psychotic Woman, The Freak, and The Hag in Charge, Hedva offers a bracing indictment of the politics that exploit sickness―relying on and fueling ableism―to the detriment of us all.

With the insight of Anne Boyer's The Undying and Leslie Jamison's The Empathy Exams, and the wit of Samantha Irby, Hedva's debut collection upends our collective understanding of disability. In their radical reimagining of a world where care and pain are symbiotic, and our bodies are allowed to live free and well, Hedva implores us to remember that illness is neither an inconvenience or inevitability, but an enlivening and elemental part of being alive.

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Essay collections rarely arrive with a thesis this exposed, and the audiobook puts it in the first minutes. Housebound with a chronic condition during the 2014 Ferguson riots, Johanna Hedva asked a question that became the essay Sick Woman Theory: how do you throw a brick through the window of a bank if you can't get out of bed? Everything in this collection grows out of that impasse, which reframes illness as a social condition rather than a private biological accident. Hedva is the only performer named on the recording, and the file runs fifteen hours and two minutes, which is a long time to spend inside an argument this uncomfortable and this well made.

Hedva Builds the Psychotic Woman and the Freak

Range is the first surprise. The publisher's own list of subjects runs from Deborah Levy and Susan Sontag to wrestling, kink, mysticism, death and the color yellow, and the collection moves between theory and autobiography without announcing the switch. Hedva builds three archetypes to think with, named in the description as The Psychotic Woman, The Freak and The Hag in Charge, and uses them against a healthcare system the copy calls byzantine. An October 29 response describes the effect in the plainest possible terms, reporting never having felt so seen by a story and calling the writing immensely personal, vulnerable and funny, which is the combination that makes the theory go down.

Reading your own essays carries a specific weight on a book like this one. The central argument concerns who gets believed when they describe their own body, and disability writing has a long history of being summarized, softened and spoken for by people who are not sick. Hedva reading their own essays removes that layer of mediation entirely: the account and the voice giving it belong to the same person, which is not a small thing in a genre where the credibility of the speaker is the subject under dispute. Fifteen hours in a single voice also gives the collection a continuity the page arrangement does not have.

A Gap of Ten Months Goes Unexplained

Do not treat this as a book to finish in a weekend. The most practical entry in the column, dated October 21, reports spending almost a month working through it in audio, one essay at a time, because each piece has enough facets to be worth sitting with. That is the correct instruction manual for a fifteen-hour collection of essays, and the format supports it, since every piece begins and ends cleanly. The same entry also predates the August 2025 date attached to this recording by ten months while describing an audio listen, which means a recorded edition was circulating well before this record's release date, and nothing on the page accounts for the gap.

What justifies the time is the argument itself. Hedva's claim is that under a system which measures human worth by the productivity of a body, caring for yourself and for other people becomes a political act rather than a private one, and the essays test that idea against insurance forms, waiting rooms and the daily labor of being disbelieved. A four-star response from May 2025, written by a retired psychotherapist, gives the clearest evidence of its usefulness: a wish to have handed copies to clients who despaired of ever being believed by family, friends, doctors and insurance companies.

Academic and Philosophical, Gross and Punk

This is not a gentle book, and one response says so more precisely than the marketing copy does. A September 2025 entry calls the collection as academic and philosophical as it is gross and punk and kinky, which is a fair summary of a text that moves from continental theory to bodily detail without warning. That same response opens by disclosing that the writer and Hedva share literary representation and received the book from that agent, a piece of transparency worth noting when you weigh the column. Listeners who want disability writing that reassures should understand that the description's own word for the book is indictment.

Dates are the other thing to read carefully. Four written responses out of five predate the release date this recording carries, arriving between October 2024 and May 2025, with only one posted afterward. The star average therefore pools readers and listeners across editions rather than measuring this file, which is common enough but worth knowing when a number is doing the work of a recommendation. Theory vocabulary is present too, so anyone expecting a straightforward illness memoir should sample an essay from the middle rather than the opening.

An Earthquake and a New Way

Chronically ill and disabled listeners are the obvious audience, and the response from November 2024, which calls the book an earthquake and a new way to understand the world, suggests what the recognition can feel like. Carers, clinicians and anyone who works inside the machinery of insurance and diagnosis will find their own practice examined from the receiving end. Readers who came up on Anne Boyer's The Undying or Leslie Jamison's The Empathy Exams, both named in the description as reference points, will recognize the territory while finding this angrier and considerably stranger.

Avoid it if you want a recovery narrative, because the collection rejects the premise that sickness is a detour from a normal life. Avoid it too if a book that cites theorists and describes kink in the same chapter is not what you signed up for. What remains is one of the most serious things written about being ill in public, delivered by the person who wrote it, and worth the month it will probably take you.

In Brief

  • Voice: Hedva is the sole performer credited, so the essays about being disbelieved arrive from the person whose credibility is the subject.
  • Big ideas: chronic illness and disability, care under capitalism, ableism, bodies and belief
  • Atmosphere: Bracing and unsentimental, funny in places you will not expect
  • Worth it?: Demanding, essential listening for anyone who has been told their symptoms are imaginary.

Is the audiobook memoir or theory?

Both, braided together. The publisher describes essays running from the theoretical to the personal, taking in Susan Sontag, wrestling, mysticism and the color yellow, so a chapter of argument may be followed by a chapter of lived experience. Listeners who want only one of those modes will find the other arriving regularly.

What is Sick Woman Theory?

The essay that made Hedva's name, written while housebound during the 2014 Ferguson protests, which asks how a person confined to bed takes part in political action. Its argument reframes illness as a social experience rather than a purely biological one, and this collection expands that idea across a much wider range of subjects.

How explicit does this audiobook get about bodies and sex?

Frank, by design. The publisher's own list of subjects includes kink and death alongside mysticism and wrestling, and the healthcare material covers treatment in detail. Nothing is included for shock, but listeners who prefer illness writing kept decorous should sample a chapter before buying.

Do you need background in disability theory to follow it?

No, though you will meet its vocabulary. Ideas get built rather than assumed, and the three archetypes the book uses are introduced and explained as it goes. A listener with no theoretical grounding may want to slow down in the more academic essays, which is easier here than in most collections.

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What Listeners Are Saying

★★★★★

I am completely changed

This book was an earthquake for me. An experience. A new way to understand the world. I keep attempting to describe why - and I keep falling short. Highly recommend.

- C. Howland
★★★★☆

Yes, yes, yes!

As a now retired psychotherapist, I must commend Ms. Hedva in all areas of discussing, defining, refining the defining and all around remarkable essays on disability and ableism. I would have wished to give copies of this book to so many of my clients who despaired at ever being heard...

- Mb4pax
★★★★★

Wow

I’ve never felt so seen by a story. This was absolutely amazing. Immensely personal and vulnerable and funny. immediately recommending to everyone I know.

- C L
★★★★★

Caretaking/caregiving

I saw this book in a shop one day, made a mental note to add it to my TBR pile, and then immediately forgot about it - until my agent fortuitously sent me a copy. It turns out Hedva and I have the same representation. But that’s not the point....

- Rebecca Robison
★★★★★

Deep, engaging work

How to Tell When we Will Die is a work of deep thinking, with mythology, science, astrology and lived experience woven together with such beauty, and existential analysis, I spent almost a month paddling through on audio, as each essay has detailed facets that I just wanted to marinate and...

- J. Sutherland

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Alexandra Reed

Written by Alexandra Reed

Founder & Literary Critic